Network 13 – Patient Support – Education

Workshop Registration – Spring 2008

Regional Workshops

Houston, TX “Empowering Patients to Overcome Barriers to Adherence”
March 6, 2008 – Houston, Texas at the Marriott Houston Hobby Airport
Get a copy of Agenda Posted 1/3/2008

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Oklahoma
Pre-Dialysis, Kidney Dialysis and Transplant Recipients Support Group
Bring your family and hear about issues and topics relevant to chronic kidney disease, dialysis and transplantation. Meet other patients and their family members. Listen, learn and share your experiences. Hear speaker talk about what is important to you and your health.

TIME: 2nd Tuesday of each Month @6:30pm

LOCATION: (NEW LOCATION for APRIL) Nancy’s 57th St Lighthouse Resturant. 5708 N. May Ave., Next to Russell Stover – Oklahoma City, OK

Contact:
Micki McLemore, LCSW Renal Social Worker at 405.640.7949

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National/Web Resources

AAKP HOSTS NEW PATIENT EDUCATION PROGRAM
TAMPA, Fla. – The American Association of Kidney Patients (AAKP) is pleased to announce the launch of a new patient education program, Kidney Beginnings: Live. This interactive program educates those who are at risk for kidney disease or who have recently been diagnosed. POSTED 4/21/2006

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Free Patient Education Materials for Kidney Month
Madison, Wisconsin – March is National Kidney month! The non-profit Medical Education Institute, Inc. (MEI) reminds health care providers and patient educators that free chronic kidney disease (CKD) materials are available for kidney health education programs.

Free materials from the Life Options Program can be downloaded or ordered at http://www.lifeoptions.org. These booklets, fact sheets, newsletters, video and audiotapes, and posters–based on research with thousands of people with CKD–provide valuable information about how to live long and live well with kidney disease.

Also available for free is Kidney School, http://www.kidneyschool.org, an interactive kidney learning center tailored to meet the needs of patients and families. Written at the 7th-9th grade level and loaded with information on topics like treatment options, diet, coping, sexuality and fertility, and much more, Kidney School’s 16, 30-minute modules attract more than 10,000 unique visitors a month. Kidney School is available 24 hours a day without log-in or registration, and all of the modules can also be downloaded.

Did you know that dialysis can be done at home? It’s true–and home patients have fewer diet and fluid limits, more freedom and flexibility, and are better able to keep their jobs. MEI provides free information on user-friendly home treatment options on Home Dialysis Central, http://www.homedialysis.org. Visitors can learn about home treatments, compare pros and cons, read real-life patient stories, find a nearby center, and talk with home patients and professionals.

The Medical Education Institute, Inc. is a nonprofit, 501(c)3 private foundation dedicated to helping people with chronic diseases learn to manage and improve their health. For reliable, unbiased information about CKD, you can turn to the MEI. To learn more, call 608-833-8033, email info@meireseach.org, or visit http://www.medicaleducationinstitute.org. POSTED 3/16/2006

Kidney School – Life Options

Popular Nutrition Module of Life Options Kidney School Now Available to Download – Click here for information.

Pediatric Educational Resource

Living with Kidney Disease – The Starlight Starbright Foundation has developed a resource in the “Explorer Series” for kids, ages 8 to teens. The link will show you what is kidney disease, it is in magazine style and “cool. “http://kidneydisease.starlightprograms.org/
POSTED 12/19/2006

National Kidney Foundation (NKF)- Hope Street

The National Kidney Foundation is now introducing Hope Street, one of the most important programs in the history of dialysis because of the innovative way it encourages patients and healthcare professionals to discuss a variety of important issues concerning dialysis. This is a large-scale effort involving virtually the entire kidney community. An Editorial Board of patients, family members, physicians, nurses, dietitians, social workers, and technicians are actively participating in its development and creation. http://www.kidney.org/professionals/kls/hopestreet/

The centerpiece of Hope Street is a regularly updated “graphic novella” that, in a very visual way, tells the story of a group of patients and their healthcare team in a dialysis center just like hundreds of centers across the U.S. Hope Street follows these individuals through the ups and downs of crises, conflicts, discoveries, and, most importantly, triumphs. POSTED 4/27/2007